It’s been a minute

It’s been a while since I’ve written in this online journal. The last time I wrote I was having some fevers and sweats. My labs came back on the edge of normal, thank goodness. The lab value for the CRP was at the end range. All other labs were good.

We know the dragon thrives on emotional stress, extreme fatigue, external pressure and stresses, inflammatory foods, etc. It seems the nights I feel very fatigued from the day, I end up having the fevers and sweats where I change my night clothes and sleep on cotton towels.

I’m going back on the anti-inflammatory diet. UGH… no wheat, no white rice, no sugar, eat much more fresh salmon and skinless chicken and much more vegetables. Lately, I’ve been searching for delicious vegan recipes. I will definitely try this route to cut out as many inflammatory foods as possible. I’ve never been vegan or strict vegetarian but I enjoy vegetables very much so this could be a healthy option.

I have an appointment with a new rheumatologist this week. My other one vanished into thin air.

I knew the office was experiencing issues trying to hire a new Rheumatologist for a couple years. When I called to make an appointment last month the phone number was disconnected and no forwarding number was given. This is awful due to I wanted the last records of my visits.

Fortunately, I have the bulk of the old records. It’s so strange that I never received a phone call that the office was closing down. I guess this new doctor will have to just review my very old records I saved from years ago and he can always get some notes from hospital stays and emergency room visits during my bad flares. I am so grateful my last huge flare was 2019.

I’m eager to have a new rheumatologist again. I always feel I need to be prepared. And these past weeks of fevers and chills are concerning me as well as sleeping more hours.

We do what we can to stay safe, but the dragon always seems to have one toe near the door ready to kick it open.

Stay healthy my friends.

Claudine

Daily Update

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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

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