Dear Friend who “feels life never goes my way”

Dear sweet friend,
We all feel this way through our lives. Life is up and then life is down, sometimes really, really down. Life and times go good and then things go bad, really bad. Ive, Been there, since 2008, 12 years of being there with this damn disease. Really scary, BUT then the sun peeks through again!!!!!!! Shines through!!!! Sparkly sunny sun with energy and beauty!!!!!!! With my illness, Ive learned to try NOT to get attached to any certain moment. I mean, Im talking, even the good times in life, especially with a disease, it is NEVER smooth sailing. I was talking with my husband last evening. I told him I finally feel good, 😁YAY!!!!! and I am a finally off of all the shots into my abdomen, the off heavy drugs and the disgusting steroids that bloat my face. And then……..I began to cry and cry and cry. Why? Because all of a sudden I felt attached to the moment and I had tremendous fear of a relapse…..in the future. But then I stopped crying and remembered, THIS is what mindfulness is about!! It’s about being present, RIGHT here Right now❣️Who the hell cares about next month or next year, a zillion things are going to happen between now and then. I have a disease that can kill me any day. And you know that I am not even joking. Then next flare could be the ‘BIG one”. But I dont care about that. I CAN NOT care about that. I move forward. We ALL move forward. There really isn’t any choice……well, there are options but thats for wimps and cowards. All we have is the ability to be grateful. Be grateful that you were born to be able to see and smell and taste and hear the birds sing!!!!!Be grateful that you can feel the the earth !!!! Be grateful to touch horses !!!!!! Be grateful that you can help others. There are ways to feel in touch with life. And there are ways to stay pessimistic. Sometimes medication can help. Never be shy about needing a bit of extra help. We all need it sometimes. Overall, I repeat to myself many times a day “Be grateful for today because its all that ya got🎵🎶”
This is how I do it. You have asked me many times how I stay happy. This is how I do it. Mindfulness saves my life again and again. Forever grateful.

Daily Update

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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

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