I was doing so well, for weeks. I ate only what was on the IF list and I always stay away from all wheat. I know enough now to know that there is no allowance that I can get away with. None. NOt even one bite of spagetti. But I have not memorized the list of foods of the list that contains about 5000 different foods. So I made a delicious curry with coconut milk as the base. It tasted amazing! But I knew something was wrong when I woke up with chills and then night sweat. I racked my brain to figure out what I had eaten that was wrong, or thought that maybe my MTX pills were failing me. When I got up in the morning, after what little sleep I got. I noticed that coconut milk ranks in at -446 for a cup! Dang! I love coconut milk!! NOw here is another thing that I need to cross off my list of delights. Oh well….as I have learned so far, giving up the things I used to think I could not live without, is not really that hard. Most of all I would rather have the energy and health to go through my days, and sleep well at night than indulge in a meal of “dangerously delicious” foods. Actually now when I’m out and friends have a piece of cake it actually looks evil to me. I know 100% that a piece of cake would set me off into a full blown flare starting back at ground zero with steroids for 8 weeks, a puffed up face, sleepless steroid nights and then another high dose of MTX. So all sugar looks mean to me! I’m back on the IF wagon and doing well again. I hope everybody with AOSD sticks to the diet! It works!
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.