If you found my site, it is possible you are searching for answers for a disease that is difficult to diagnosis. This is how most people find my journal of living with a rare disease. They have symptoms and are suffering without helpful information to guide them. It is scary thing to be suffering with symptoms that are not fitting into any certain diagnosis. Believe me, I have been there. I have had this disease since 9/2/2008. It always amazes me how I can feel extremely well one day and be in the hospital the next. If you think you may have AOSD, or know somebody who does, I pray that you find relief and a physician to help you through this awful nightmare rare disease ordeal. After several near death experiences from extreme fevers reaching to 105 degrees, affected organs, 27 hospital visits, I know and understand the fear. Please feel free to comment on any post. I reply quickly, because I know when I was suffering, just having somebody to talk to who knew what I was going through saved my life, several times.

Wishing you good health.

Claudine

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