It’s been quite a while since my last flare (2 years is a long time!) Although I do check for symptoms when I get very fatigued. About 3 days ago I had a rash on my neck and chills at night at 7pm (My marker time)
I took a hot shower and went to bed. I had a fever and the fever broke 3 hours later. I knew exactly why this happened. I have gotten back to my life! What a joy!! My blood pressure meds are now down to only 1 a day (as opposed to 4 different meds for 4 months due that situation) I’ve been feeling so well that I’ve been riding my horse and training!!
I’ve owned my beautiful horse for 6 years. But each time I was getting stronger and healthy, I would flare or break bones due to the steroids weakening my skeleton from the waist down, so I had never gotten to show him.
I take a very good bone supplement and consume calcium daily. I think this helps me.
Lately, I have felt great and I entered my 1st horse show and I won!!! I won 1st place and a 2nd place and Reserve Champion!! Finally, I got to go into the huge main ring and show my boy for the 1st time!!!!
I cried a lot that day! Happy tears as the crowd cheered for us!! I’ve waited many years for this day!!
After the show and the elation and fatigue of entering 3 show classes, my body needed rest and I rested for 3 days afterwards and then I had the chills and slight rash and fevers. But then after a few days I felt fine.
I have learned, finally, to stop everything when I am depleted. It’s hard to do. Very hard. Things don’t get done and I feel guilty. It’s an awful feeling. But is feeling guilty worse than a flare ??
So, things don’t get done. The world doesn’t end.
It’s been 2 years now that I have not flared. It’s a bizarre thing to even admit that I think about this at least once daily. I wish I didn’t. But I do. At some time during the day, out of nowhere, the thought, “Do not Flare” will we enter my mind.
I am happy to say, at this time, I am healthy. I pray that I can stay this way. I have been in too many emergency rooms in the last few years. I hope to stay out of them. I hope you all stay out of them too.
Wishing you good health.
Stay healthy my friends.
I shared a photo of our very 1st show and our ribbons!!
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.